Epilepsy/Seizure Disorders | <<Neuro Home |
"The North American AED (antiepileptic drug) Pregnancy Registry was established in 1997 for pregnant women in the United States and Canada at the Massachusetts General Hospital in Boston, Massacusetts. It was established with funds provided by six companies that manufacture "old" and "new" anticonvulsant drugs. the major objective is to obtain and publish information on the frequency of major malformations, such as heart defects, spina bifida and cleft lip, among infants whose mothers had taken one or more AEDs to prevent seizures or to treat any other medical condition. The highest priority was new information on the many "new" AEDs marketed in the past 10 years."
The Epilepsy Foundation refers back to ClinicalTrials.Gov and CenterWatch
Patient Resources | top |
"The North American AED (antiepileptic drug) Pregnancy Registry was established in 1997 for pregnant women in the United States and Canada at the Massachusetts General Hospital in Boston, Massachusetts. It was established with funds provided by six companies that manufacture "old" and "new" anticonvulsant drugs. The major objective is to obtain and publish information on the frequency of major malformations, such as heart defects, spina bifida and cleft lip, among infants whose mothers had taken one or more AEDs to prevent seizures or to treat any other medical condition. The highest priority was new information on the many "new" AEDs marketed in the past 10 years."
"Read medical information written by physicians for patients and consumers on important health topics" Some commercial content
"The Epilepsy Foundation is the national voluntary agency solely dedicated to the welfare of the 2.7 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy and services. In addition to programs conducted at the national level, epilepsy clients throughout the United States are served by local Epilepsy Foundation offices in nearly 100 communities."
"HEALTHOLOGY is a leading producer and distributor of physician-generated health and medical information on the Internet. With one of the largest and most distinguished libraries of original, streaming health programs and physician-authored articles on the Web, Healthology provides companies with seamless solutions for their online health information and marketing needs." Some commercial content. Multimedia.
Contains separate sections on § Signs and symptoms § Causes § Risk factors § When to seek medical advice § Screening and diagnosis § Complications § Treatment § Self-care § Coping skills.
The NYU Comprehensive Epilepsy Center is currently the largest epilepsy program in the Eastern United States. The Center offers testing, evaluation, screening, treatment, drug trials, alternative therapies, and surgical intervention for children, adolescents, and adults with all forms of epilepsy.
Comprehensive site compiled by an individual with epilepsy."This epilepsy navigator was created to serve those people affected by seizures through support, encouragement and education in order to provide them with a positive quality of life. This site was created by a person with epilepsy who is offering knowledge, real life experiences and support for persons with epilepsy and for friends & family members of those with epilepsy and seizure disorders."
Statistics | top |
"The North American AED (antiepileptic drug) Pregnancy Registry was established in 1997 for pregnant women in the United States and Canada at the Massachusetts General Hospital in Boston, Massachusetts. It was established with funds provided by six companies that manufacture "old" and "new" anticonvulsant drugs. The major objective is to obtain and publish information on the frequency of major malformations, such as heart defects, spina bifida and cleft lip, among infants whose mothers had taken one or more AEDs to prevent seizures or to treat any other medical condition. The highest priority was new information on the many "new" AEDs marketed in the past 10 years."
Discusses prevalence, incidence, risk and remission statistics of epilepsy and seizure disorders in the United States
Compiled by New York Online Access to Health (NOAH) has links to resources about epilepsy statistics.
