Parkinson and other Movement Disorders | <<Neuro Home |
"PDtials.org is a website that helps people easily find and understand Parkinson's disease clinical trials." It is "the website of the PDtrials campaign, an initiative of the major Parkinson's patient voluntary groups to accelerate the development of new treatments for the disease." The PDtrials campaign is led by the "Parkinson's Disease Foundation, in collaboration with the following advocacy groups: American Parkinson Disease Association, Inc.; Parkinson's Action Network; The Parkinson Alliance; The Michael J. Fox Foundation for Parkinson's Research; National Parkinson Foundation; WE MOVE."
Patient Resources | top |
"The American Parkinson Disease Association, Inc. was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease."
"The Bachmann-Strauss Dystonia & Parkinson Foundation was established in 1995 to find better treatments and cures for the movement disorders dystonia and Parkinson's disease and to provide medical and patient information. Key Accomplishments."
Open Resource project features links to: Organizations, Support Groups and many resources.
The latest medical news and information for patients or friends/parents of patients diagnosed with Parkinson’s Disease. Includes Medical News and Alerts, Parkinson’s Disease Information, Discussion Groups and Newsgroups and Other Related Sites.
“HEALTHOLOGY is a leading producer and distributor of physician-generated health and medical information on the Internet. With one of the largest and most distinguished libraries of original, streaming health programs and physician-authored articles on the Web, Healthology provides companies with seamless solutions for their online health information and marketing needs.” Some commercial content. Multimedia.
Includes an introduction; signs and symptoms; causes; risk factors; when to seek medical advice; screening and diagnosis; complications; treatment; self-care; and coping skills
Includes "Latest News, From the National Institutes of Health, Overviews, Diagnosis/Symptoms, Treatment, Alternative Therapy, Nutrition, Coping, Disease Management, Related Issues, Financial Issues, Clinical Trials, Genetics, Research, Dictionaries/Glossaries, Directories, Organizations, Children, and Other Languages.
“The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda.”
Comprehensive resource for individuals who are "current or future caregivers to patients with Parkinson's Disease."
"NPF is the largest and oldest national Parkinson foundation in the United States. NPF supports Parkinson-related research, patient care, education, training, and outreach."
Includes What is Parkinson's Disease? Is there any treatment? What is the prognosis? What research is being done? Organizations Related; NINDS Publications; Information Publicaciones en Español; and Additional Resources from MEDLINEplus.
Philanthropic organization founded in 1999 that guarantees that "100% of all individual donations and the net proceeds from all events goes directly to Pakinson's research."
PDF "...is a national non-profit organization devoted to funding research, providing education and advocating for Parkinson’s." Links to publications & resources, "ask the expert," more.
"The web has become an increasingly important tool for people in the Parkinson's community to communicate. The links we have posted here are just a small sample of hundreds of Parkinson's sites in America and around the world. These sites provide wide array of information that you may find relevant as you learn more about Parkinson's disease, and the diverse Parkinson's community."
"The mission of the Parkinson's Institute is to find the cause(s) and a cure for Parkinson's disease (PD), and provide the best possible treatment to those afflicted with the disease. The Institute staff is striving to find the Cause(s) of Parkinson's disease, develop a Cure for it, while providing world-class Care for patients. Help for existing patients with Parkinson's disease, Hope for current and future sufferers. Since its founding in 1988, the Institute has been pursuing the elements of its mission, growing from a handful of employees in a trailer parked behind a hospital, to a staff of almost 100 focusing on three main areas: Basic research, Clinical research, and patient care. The Parkinson's Institute is the only organization that combines the resources of a full basic research laboratory with access to a wet lab, Stereology facility, and tissue bank; a cadre of 30 clinical researchers and epidemiologists; and a patient care clinic with a database of thousands of Parkinson's disease patients, conducting some 4,000 patient visits each year. The synergies generated by this co-location of three major investigative areas create a powerful tool for Parkinson's disease research."
Provides "the latest news about Parkinson's disease and treatment." Sections include "Parkinsons Disease Overview," "Parkinsons Disease Treatments," Parkinsons Disease: Personal Stories,,"and "Talking to Your Doctor about Parkinsons."
Viartis are independent and entirely self funded medical researchers based in London, England. Viartis are not part of any other company, university or organisation. This web site is independent and entirely non-commercial. It contains no adverts. Nothing can be bought directly from this web site. It does not receive payments from linking to any web sites contained in this web site. This web site is viewed by thousands of people in over a hundred countries."
Non-profit international patient advocacy which seeks to meet its goals by doing the following: “take part in and/or finance research activities, urge pharmaceutical companies and government institutions of the various countries to support the guidelines recommended by the associations of Parkinson’s patients, coordinate and promote interchange of information among its members with the aim of solving problems of mutual interest and pursue any other activity which may prove useful for attaining the Association’s goals.”
“WE MOVE is the Internet's most comprehensive resource for movement disorder information and education and the only organization of its kind. Since 1991, this 501(c) 3 not-for-profit organization has been educating and informing patients, professionals, and the public about the latest clinical advances, management, and treatment options for neurologic movement disorders.”
Statistics | top |
"Viartis are independent and entirely self funded medical researchers based in London, England. Viartis are not part of any other company, university or organisation. This web site is independent and entirely non-commercial."
