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RehabTrials.org is sponsored by the Kessler Medical Rehabilitation Research and Education Corporation (KMREC), anon-profit organization whose mission is “to conduct basic and applied research in the field of physical medicine and rehabilitation.” This site provides a registry of clinical trials geared specifically to rehabilitation populations.
The Stroke Trials Directory is “a continuously updated registry of randomized clinical trials. This project is a joint effort of the Internet Stroke Center at Washington University School of Medicine, the American Stroke Association and the National Institute of Neurological Disorders and Stroke.” The Directory is specifically designated for health professionals and research scientists. The site directs patients and their families to a separate page of the Internet Stroke Center, Clinical Trial Listings and Resources. The latter lists: Clinical Trials.gov; Acurian; Center Watch; Veritas Medicine; its own Stroke Trials Directory; and RehabTrials.org, also listed below.
The Stroke Information Directory was started by “family members of stroke survivors who endeavor to assist consumers, clinicians, and researchers in their quests for online resources.” The organization continually gleans information from the Internet and adds resources based on suggestion from visitors to its site.
Patient Resources | top |
The American Stroke Association is a division of the American Heart Association and has sections for the general public as well as Healthcare professionals.
The Mission of the American Stroke Foundation is"To support stroke survivors, their families, caregivers and friends by providing resources, services, education and information that improves their quality of life."
Obtain maps showing cause of death, year, gender, and race/ethnicity
"The Brain Attack Coalition is a group of professional, voluntary and governmental entities dedicated to reducing the occurrence, disabilities and death associated with stroke. The goal of the Coalition is to strengthen and promote the relationships among its member organizations in order to help stroke patients or those who are at risk for a stroke. Professional resources include Guidelines and Orders for systems development for acute stroke care (including stroke team or stroke center development), and Pathways for the rapid diagnosis and treatment (both immediate and long-term) of acute stroke. Patient Resources includes links to sites that provide helpful information to stroke patients, their families and caregivers."
This website provides information on how to prevent coronary artery disease. In addition, information is provided explaining what coronary artery disease, stroke, and heart attacks are.
" The Internet Stroke Center is a non-profit, educational service of the Stroke Center at Barnes-Jewish Hospital, Washington University Medical Center and the Cerebrovascular Diseases Section of the Department of Neurology at Washington University School of Medicine in St. Louis. The Internet Stroke Center exists to advance understanding of stroke research and clinical care. Our goal is to provide current, professional, un-biased information about stroke. The information on this site is obtained from published accounts, meeting presentations, internet searches, and direct correspondence."
Make the Link! stresses that diabetes management is more than control of blood glucose. People with diabetes must also manage blood pressure and cholesterol and talk to their health provider to learn about other ways to reduce their chance for heart attacks and stroke. Provides information for people with diabetes on how to lower their risk for heart disease and stroke.
From the National Library of Medicine. Offers links to news, overviews, diagnosis/symptoms, prevention/screening, rehabilitation, research, clinical trials, genetics, statistics, other organizations, etc.
The National Aphasia Association, NAA, is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.
"The public is dangerously misinformed about stroke, we aim to change that. Our mission is to reduce the incidence and impact of this life-threatening medical condition. We're here to save lives, improve quality of care and increase patient outcomes. Established with this compelling mission, National Stroke Association has grown to be the leading resource for stroke. NSA is the only national non-profit organization in the United States devoting 100 percent of its resources to stroke through a variety of innovative and high impact programs. We provide education, services and community-based activities in prevention, treatment, rehabilitation and recovery. NSA serves the public and professional communities —people at risk, patients and their health care providers, stroke survivors, and their families and caregivers."
NOAH (New York Online Access to Health) offers brief articles in English and Spanish in lay language. Here find articles on causes and risk factors, diagnosis and symptoms, types of stroke, difficulties such as aphasia or paralysis, treatment, clinical trials, etc.
| Links to the most recently indexed articles (English language) in PubMed. |
Statistics | top |
A Report from the American Heart Association Statistics Committee and Stroke Statistics Subcommittee.
Heart Disease and Stroke Mortality rates by state. Collaboration between the CDC and the states.
(U.S., Canadian and worldwide.)
"...state-based registries that measure, track, and improve the delivery and quality of stroke care..."
